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Wednesday, July 23, 2008

Visit #2... and many prayer requests

Today we had our second visit with Caleb, who they call Maksat here. We left the orphanage very concerned yesterday about some of his behavior, specifically how he kept arching his back. It seemed like he was trying to get away from us and that he also just couldn't get comfortable. We decided that when we visited today that we would try not to overstimulate him. We realize he has probably never been held for 2 hours straight in his life, or had people talking to him and loving on him like we were.
When they brought him out he was wearing one of his new outfits! They chose a size 6-9 month outfit that we brought and he is clearly not a size 6-9 months!! The pants kept falling off so they eventually brought us a different pair of pants that were smaller and told us that we could take him outside... but only if he had a hat on. I guess they think he needs to stay super warm since it was at least 80 degrees outside at 10am. Here's a picture of Bryan carrying him from his baby house:

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We really enjoyed holding him outside. He is a very sweet, laid back and darling little boy. I thought he looked pretty funny in the hat they gave us. In this picture I think he kind of looks like a little old man with that hat on:

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Here is a picture of Caleb with his Daddy:
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Caleb seemed content to be held today. He only arched his back once or twice. We focused on not giving him too much eye contact, and on many occasions he would make eye contact with one of us. We would look back for a little bit and then look away to give him a "break". When we would turn back to look at him again he would still be looking at us. At one point he reached up and touched my cheek. To say we are in love with him is an understatement.

He started to get sleepy so I rocked him back and forth (one of his favorite things!) and sang Amazing Grace to him until he fell asleep. There is nothing sweeter than a sleeping baby.

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After our visit was over we met with the orphanage director to go over his medical history and background. We came on this trip with a few medical concerns already, so we knew she would probably mention his developmental delays since at age 4 months he can't hold his head up yet. What we didn't expect was for her to tell us that they think he has been having seizures and started him on anti seizure medication a few weeks ago. We are not sure why we had not been told this information as it was happening. Regardless, it is upsetting for us to hear and hard to know exactly what is wrong with him. We are unclear if he is having seizures (we haven't seen them happen) and we don't know the cause. It could be from a vitamin deficiency (highly likely due to the poor diet he recieves) or it could be a more serious seizure disorder coupled with other neurological problems.
We met with Saule (our in country coordinator) after we got back to the hotel and were able to share all our concerns with her. Saule had already begun trying to get an appointment with a pediatric neurologist at the Children's Hospital in Bishkek. She had been told the doctor was on vacation for at least another week. By the grace of God the doctor called her while were sitting there and said he was back from vacation and would examine Caleb tomorrow morning. We truly believe God is at work, and although we are unsure of the outcome and how we will proceed at this point we can clearly see that He loves this baby boy and has a plan to help him and bring him an amazing future. We are praying that his future will be with us.
We covet your prayers right now as we await the doctor's appointment tomorrow and prepare to make a decision about adopting this adorable baby boy. We know God will not give us more than we can handle, and that when it feels like too much He will take over and handle all of it for us. Please pray specifically for these things:
-For Caleb, that he would be healthy and that his needs would be met at the hospital tomorrow
-For the doctors, that they would have clarity and wisdom as they examine him
-For Bryan, that he would be able to understand the information given to him by the doctors and that God would be with him as he guides us in a decision about Caleb's medical issues
-For me, that I could be strong and trust God to be with us and for my health as the stress of all of this has made me physically sick
-For God's will to be done in this situation, and that we would have the courage to seek it and follow it
Right now I am reminded of a verse I packed with me as part of my 'spiritual equipment'. The passage is from Paul's letter to the Ephesians (Ephesians 3:4-21) and he is telling them what his prayer for them is. Paul talks about how complete God's love is, and how he hopes they will understand how wide and long and high and deep is the love of Christ. We can feel the love of God for us and for Caleb even in the midst of this struggle. His love has been wide enough to reach to the corners of Kyrgyzstan. His love is long enough to span our entire lives and the entirety of Caleb's life. His love is high enough to accompany us on our most joyous days - like meeting our son - and is deep enough to carry us on our darkest moments, like when we are terrified for this baby boy's health.
Please pray for us and for Caleb. We know that God can do immeasurably more than we ask or imagine just like Paul says to the Ephesians. We ask that you keep this information about his medical history private as we don't intend to share it on our public blog at this point. It is difficult news to share but we know we can only benefit from having more people praying for us and for Caleb.

12 comments:

Carol M said...

Dear Betsy and Bryan, I thank God that your faith is so strong. I would do anything to take this pain away from you. I'm on my knees praying for you specific needs right now. Love you, Mom

Suzanne Bilyeu said...

Betsy and Bryan:

I am sorry to hear of the concerns about the seizures. They certainly did not mention any of that to me when we were there. Please let know if there is anything that I can do to help or answer any potential questions.

Suzanne

Maria said...

This will be long. It's hard to email since I'm out of town as well. I'd call you but don't know if I'd catch you in. First, do you have an IA doctor? If not, try to get someone back home to hook you up with one who will do a phone consult with you. If you need a referral, Dr. Aronson or Dr. Jeri Jenista is who we used and she will shoot straight with you. Seeing him at the Children's Hospital there is good, but, we found, they just don't practice medicine like we do so the results are just... well, sometimes weird sounding to us westerners. You'll remember our situation -- God is certainly in control. There was no reason to believe she was going to come home to be our daughter and she is. Know that I will pray all day today for your requests, while I'm working. I know EXACTLY how you feel -- that sick feeling -- and I wish I could crawl through the computer and give you a big hug. Don't lose faith, but also, know your limitations as a family. God is already on the other side of the outcome, but you know that. Email me if you want. I don't know if you have Skype, but if you do and want to talk after say 6 our time, my user ID is mb_latham. It's free. You can email to let me know you'll be calling if you want.

Lisa Brotherton said...

I am saying prayers for all of you. I wish this road was an easier one for all involved. But easy is not a word that describes anything in this journey.
We will be anxious to hear what you learn tomorrow.
God bless and take care of each other!

Unknown said...

Hey BPs,

Dad and I are praying for all of your concerns. As much as your heart aches for Caleb, our hearts ache for the two of you. God is in control and His answer is the answer even if we do not agree with it or understand it. You have strong faith, each other and loving families to support you with your decision. We love you.

Love, GranJan

Suzanne said...

Betsy and Bryan, my heart and thoughts are with you all. Will put all positive energy into your prayer requests.

Big, strong hug-
Suzanne B in CA

Nancy said...

I'm praying for you guys.

Rachel said...

betsy, I have been out of town (still am) so I am just now catching up. First, please know that we join you in prayer. We pray for healing, wisdom, and strength.

Second, Caleb is a doll! I love the hat, but the strawberry outfit was definitely my favorite. I'm so glad you guys made it there safely and I pray things go smoothly from here on out. It's ok to be scared...you're a mom.

Aunt Lucy said...

You two: This is tough but your faith will carry you through. Be patient, be strong. You will do the right thing, somehow you will know. You have the prayers and support of many. Hang in there, all will be ok. You will see.
".....draw your strength from the LORD and from HIS mighty power....." Ephesians 6:10

Clare and Jerry said...

Betsy and Bryan,

Our thoughts and prayers are with you in this joyous, yet difficult time. Try to believe that you are with Caleb now for a reason and that all will work out for the best in the end.

I have to agree with Maria. You really should have the support of an IA doc. I'll send you the contact info for ours. I am NOT a medical professional, but try to find out all the potential causes of seizures in an infant (from epilepsy to hypoglycemia) and then ask the IA doc for prognosis and potential outcomes for each scenario. In the meantime, be there for Caleb. Right now, you're the only support he has.

Love, hugs and peace to you all.

Danasu said...

Betsy & Bryan

Our thoughts and prayers are with you. Love you both.

Hilary Marquis said...

Betsy,

God is right there with you and with Caleb. Your faith is strong, and I know you are putting your trust in the right place! I wish I had some wonderful words of wisdom for you...I do know this, God will not give you more than you can handle and He does have a plan. I will pray for all you and if I can help from here just say the word!

In Him,
Hilary